Event

Sept 15th Zoomba with the CFA and Assata McKenzie!!

Information on our ZOOMBA class Sept 15th

Event

Webinar Sept 11 – Understanding the different types of Gene Therapy

Information on the upcoming webinar on Sept 11 – Understanding the different types of Gene Therapy

News

A message about Cardiac month

A message from Julia Alton, Executive director of CFA about Cardiac month.

Event

Teen and Youth Chat Part 2

Information on the second part of our Teen and Youth series!

Event

Fabry Gene Therapy Webinar July 8th 2020

Information on the upcoming Fabry Gene Therapy Webinar July 8th

News

AVROBIO updated criteria for clinical trial

Information available here: https://www.fabryclinicaltrialca.com/

Media

What’s your silver lining?

Come see our silver lining!

Media

Virtual Town Hall: Being Rare in a Pandemic, Dr Aneal Khan

Dr Khan hosted a Town Hall for multiple rare disease organizations. Here is the video!

Media

Fabry Awareness Month – Advocating for Women living with Fabry Disease

Julia and Donna Strauss’ story, and advocacy for women with Fabry.