Event

Teen and Youth Chat Part 2

Information on the second part of our Teen and Youth series!

Event

Fabry Gene Therapy Webinar July 8th 2020

Information on the upcoming Fabry Gene Therapy Webinar July 8th

News

AVROBIO updated criteria for clinical trial

Information available here: https://www.fabryclinicaltrialca.com/

Media

What’s your silver lining?

Come see our silver lining!

Media

Virtual Town Hall: Being Rare in a Pandemic, Dr Aneal Khan

Dr Khan hosted a Town Hall for multiple rare disease organizations. Here is the video!

Media

Fabry Awareness Month – Advocating for Women living with Fabry Disease

Julia and Donna Strauss’ story, and advocacy for women with Fabry.

Event

Virtual Education Series: COVID-19 – Mindfulness for Uncertain Times

Information on the second in our Virtual Education Series!

Media

Memo from Innomar regarding COVID-19 in home safety measures

Innomar is implementing additional measures in place to ensure ongoing patient and nurse safety.

Event

Virtual Education Series

Information for the Fabry community about COVID-19