Information available here: https://www.fabryclinicaltrialca.com/
Come see our silver lining!
Dr Khan hosted a Town Hall for multiple rare disease organizations. Here is the video!
Julia and Donna Strauss’ story, and advocacy for women with Fabry.
Information on the second in our Virtual Education Series!
Innomar is implementing additional measures in place to ensure ongoing patient and nurse safety.
Information for the Fabry community about COVID-19
Information to join the upcoming webinar.
Please Click Here to see the attached information on the new Gene Therapy study by STARR. Additional information found at: www.staarclinicalstudy.com
Information and Registration for CFA Fabry Family Camp!