Event

Virtual Education Series: COVID-19 – Mindfulness for Uncertain Times

Information on the second in our Virtual Education Series!

Media

Memo from Innomar regarding COVID-19 in home safety measures

Innomar is implementing additional measures in place to ensure ongoing patient and nurse safety.

Event

Virtual Education Series

Information for the Fabry community about COVID-19

Event

Webinar Thursday March 12 2020 with Dawn Laney

Information to join the upcoming webinar.

Media

New phase I/II clinical study to explore the potential of ST-920 investigational gene therapy to treat Fabry disease

Please Click Here to see the attached information on the new Gene Therapy study by STARR. Additional information found at: www.staarclinicalstudy.com

Event

CFA Fabry Family Camp details!

Information and Registration for CFA Fabry Family Camp!

News

Galafold Oral Chaperone Therapy Reimbursed in Canada

The Canadian Drug Expert Committee (CDEC) and INESSS (Quebec) have recommended in favour of reimbursement of Galafold for….

Event

Canadian Fabry Family Camp: May 29-31, 2020

Information on the Canadian Fabry Family Camp: May 29-31, 2020

Media

BC/Yukon Patient Empowerment Meeting followup

A note to everyone who joined us!