Arrive bientôt…

Canadian Organization for Rare Disorders (CORD)
Regroupement québécois des maladies orphelines (RQMO)
Institute for Optimizing Health Outcomes
Fabry International Network
Fabrazyme.com
Fabry Community
Fabry – USA
Fabry Australia
Lysosomal Disease Network (LDA)
Fabry – England (MPS Society)
Global Organization for Lysosomal Diseases (GOLD)
Association des Patients de la Maladie de Fabry (APMF) – France
Fabry Patient Group – Norway
Fabry Support & Informatie Groep Nederland
Fabry Suisse
Morbus Fabry – Germany
Lysosomal Storage Disorders – France

Arrive bientôt…

Teacher’s Guide
BioMed Central – Fabry Research Article
Mount Sinai School of Medicine – Fabry
National Center for Biotechnology Information – Fabry
Fabry Registry
U of T – Medical Biophysics – Professor Jeffrey A. Medin – Fabry
The National Institute of Neurological Disorders and Stroke (NINDS) – Fabry
National Institutes of Health (NIH)
National Organization for Rare Disorders
Clinicaltrials.gov
Pharmacologic Chaperone Responsiveness in Canadian Patients with Fabry Disease
Galafold Product Monograph (March 26 2019)
Melinda Krynen Hill, RP, MEd, MPH

Additional reading:

Spice It Up magazine Nov. 2017 (English or French)

L’Association Canadienne de Fabry (ACF) s’engage à améliorer la vie des personnes qui vivent avec la maladie de Fabry et ceux qui sont affectée par la maladie de Fabry au Canada.

Numéro d’enregistrement 827560871 RR0001

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748 Kelly St
Thunder Bay ON P7E 2A1
Canada

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