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Galafold Oral Chaperone Therapy Reimbursed in Canada

The Canadian Drug Expert Committee (CDEC) and INESSS (Quebec) have recommended in favour of reimbursement of Galafold for….

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Canadian Fabry Family Camp: May 29-31, 2020

Information on the Canadian Fabry Family Camp: May 29-31, 2020

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CFA Webinar November 18 2019 with Dr. Stacey Fueur – Psychological issues of living with a Rare Disease

Information regarding the upcoming webinar.

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BC/Yukon Patient Empowerment Meeting followup

A note to everyone who joined us!

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AVRO-RD-01-201, Phase2 Gene Therapy Study

Information on the Avrobio study: AVRO-RD-01-201, Phase2 Gene Therapy Study

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New study, which is being performed at Emory University by Lacie Mehr

Désolé, cet article est seulement disponible en Anglais Américain.

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Dr. Aneal Khan: Changing the Outlook for Rare Disease with Precision Medicine

Désolé, cet article est seulement disponible en Anglais Américain.

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AVROBIO Study information (AVR-RD-01)

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Graham Crouse – Thank you

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AVROBIO Announces New Data in Clinical Trials of AVR-RD-01 Investigational Gene Therapy for Fabry Disease

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