Event

Fabry Gene Therapy Webinar July 8th 2020

Information on the upcoming Fabry Gene Therapy Webinar July 8th

News

AVROBIO updated criteria for clinical trial

Information available here: https://www.fabryclinicaltrialca.com/

Media

What’s your silver lining?

Come see our silver lining!

Media

Virtual Town Hall: Being Rare in a Pandemic, Dr Aneal Khan

Dr Khan hosted a Town Hall for multiple rare disease organizations. Here is the video!

Media

Fabry Awareness Month – Advocating for Women living with Fabry Disease

Julia and Donna Strauss’ story, and advocacy for women with Fabry.

Event

Virtual Education Series: COVID-19 – Mindfulness for Uncertain Times

Information on the second in our Virtual Education Series!

Media

Memo from Innomar regarding COVID-19 in home safety measures

Innomar is implementing additional measures in place to ensure ongoing patient and nurse safety.

Event

Virtual Education Series

Information for the Fabry community about COVID-19

Event

Webinar Thursday March 12 2020 with Dawn Laney

Information to join the upcoming webinar.