Dernières nouvelles et événements en lien avec la maladie de Fabry

Évén

Webinaire du jeudi 12 mars 2020 avec Dawn Laney

Information to join the upcoming webinar.

Médias

New phase I/II clinical study to explore the potential of ST-920 investigational gene therapy to treat Fabry disease

Désolé, cet article est seulement disponible en English.

Évén

CFA Fabry Family Camp details!

Information and Registration for CFA Fabry Family Camp!

Nouv

Galafold Oral Chaperone Therapy Reimbursed in Canada

The Canadian Drug Expert Committee (CDEC) and INESSS (Quebec) have recommended in favour of reimbursement of Galafold for….

Évén

Canadian Fabry Family Camp: May 29-31, 2020

Information on the Canadian Fabry Family Camp: May 29-31, 2020

Évén

CFA Webinar November 18 2019 with Dr. Stacey Fueur – Psychological issues of living with a Rare Disease

Information regarding the upcoming webinar.

Médias

BC/Yukon Patient Empowerment Meeting followup

A note to everyone who joined us!

Nouv

AVRO-RD-01-201, Phase2 Gene Therapy Study

Information on the Avrobio study: AVRO-RD-01-201, Phase2 Gene Therapy Study

Nouv

New study, which is being performed at Emory University by Lacie Mehr

Désolé, cet article est seulement disponible en English.

Médias

Dr. Aneal Khan: Changing the Outlook for Rare Disease with Precision Medicine

Désolé, cet article est seulement disponible en English.

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