Information and registration for this virtual event
Registration closed
Link to the « All in the family » video
Information on the resent press release from AVROBIO
Links for the Fabry Connection Videos
Information on a study to help better understand Fabry Disease.
Female retreat 2022
Information on our Webinar on May 26
Information on the webinar April 14th
The Canadian Government has a website now for working on a national strategy for high cost drugs for rare diseases.