Information and registration for this virtual event
Registration closed
Link to the “All in the family” video
Information on the resent press release from AVROBIO
Links for the Fabry Connection Videos
Information on a study to help better understand Fabry Disease.
Female retreat 2022
Information on our Webinar on May 26
Information on the webinar April 14th
The Canadian Government has a website now for working on a national strategy for high cost drugs for rare diseases.