Hello CFA members,

The Canadian Government has a website now for working on a national strategy for high cost drugs for rare diseases.

Here is some information from their site with links. We wanted to pass this along to everyone as it is important for all.

As Canada considers how best to create a national strategy on high-cost drugs for rare diseases, it is important that Canadians – especially patients, their families and their caregivers – have a voice in helping to shape it. We invite Canadians to share their ideas and views on what a national strategy could look like. This feedback will help inform the design of the strategy and ensure it helps patients get better access to the effective drugs they need.
Information Link: Building a National Strategy for High-Cost Drugs for Rare Diseases: A Discussion Paper for Engaging CanadiansHere is link to their online questionnaire.

Thank you,
Julia Alton
Executive Director
Canadian Fabry Association

“Be Rare. Be YOU.”

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Twitter: @CdnFabry


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