News

A message about Cardiac month

A message from Julia Alton, Executive director of CFA about Cardiac month.

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Teen and Youth Chat Part 2

Information on the second part of our Teen and Youth series!

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Fabry Gene Therapy Webinar July 8th 2020

Information on the upcoming Fabry Gene Therapy Webinar July 8th

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AVROBIO updated criteria for clinical trial

Information available here: https://www.fabryclinicaltrialca.com/

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What’s your silver lining?

Come see our silver lining!

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Virtual Town Hall: Being Rare in a Pandemic, Dr Aneal Khan

Dr Khan hosted a Town Hall for multiple rare disease organizations. Here is the video!

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Fabry Awareness Month – Advocating for Women living with Fabry Disease

Julia and Donna Strauss’ story, and advocacy for women with Fabry.

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Virtual Education Series: COVID-19 – Mindfulness for Uncertain Times

Information on the second in our Virtual Education Series!

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Memo from Innomar regarding COVID-19 in home safety measures

Innomar is implementing additional measures in place to ensure ongoing patient and nurse safety.

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