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Vancouver Patient Empowerment meeting information – Oct 19 2019

Vancouver Patient meeting registration information

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Dr. Aneal Khan: Changing the Outlook for Rare Disease with Precision Medicine

Hello Canadian Fabry Association! Please see this great video featuring Dr. Aneal Khan. It is a great story on Precision Medicine and Gene Sequencing . https://vimeo.com/healthandfamily/review/345778206/93e2d1f34d For any additional information please visit these resources: www.facebook.com/UpHealthandWellness/ www.facebook.com/CanadianHealthFamily/ https://twitter.com/CAHealthFamily

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AVROBIO Study information (AVR-RD-01)

Hello CFA Members, please see below this information on AVROBIO’s ongoing study (AVR-RD-01). Thank you! AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing disruptive therapies that have the potential to transform patients’ lives in a single dose. Gene therapy involves the transplantation of normal genes into cells in order to […]

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Graham Crouse – Thank you

On behalf of the Canadian Fabry Association we would like to thank Graham Crouse for serving as a board member for over 15 years. Graham was one of the original board members and has helped many patients in Nova Scotia to cope with Fabry disease. He has done an amazing job at facilitating our quarterly […]

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AVROBIO Announces New Data in Clinical Trials of AVR-RD-01 Investigational Gene Therapy for Fabry Disease

Click here for the full article. Highlights:   Relevant Background   AVROBIO has two ongoing clinical studies of AVR-RD-01. AVR-RD-01 is an investigational gene therapy for Fabry disease. Eight patients have been dosed across these two studies. There are five patients in the investigator-sponsored Phase 1 trial, which is fully enrolled. There are three patients […]

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Moncton Patient Empowerment meeting information – Sept 14 2019

Moncton Patient meeting registration information

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ICARE research study information (English / Français)

Hello Canadian Fabry Association, Below is some information on a 3rd party research project if anyone is interested. This is not being conducted by the CFA, we are passing along this information.   A french translation will follow / Traduction française à suivre   ICARE, an international market agency specializing in medical and pharmaceutical research, […]

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CFA Webinars – Summer break

Hello everyone, We will be taking a break from the normal webinar schedule for the summer. We will return Oct 2nd with our next webinar. Thank you everyone for making our webinar’s a success!   Ryan Deveau Secretary | Canadian Fabry Association

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Evelyn Williamson – Thank you

On behalf of the Canadian Fabry Association we want to thank Evelyn Williamson for her years of dedication to our organization. Evelyn was instrumental participating in our push for the government to fund enzyme replacement therapy for patients in the province of Nova Scotia. She was always a ray of sunshine to the patients she […]

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Webinar Wednesday – June 12 – Dr. West

Webinar Wednesday Hosted by Ryan Deveau

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Webinar Thursday – May 30th – Dr. Banikazemi

Webinar Thursday Hosted by Ryan Deveau

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