Do you have 12 minutes to help us learn more?
Click the link below for the Canadian Fabry Association Community Insights Survey and be entered into a draw to win 1 of 6 $50 Amazon gift cards.
Link: https://forms.office.com/r/
The Canadian Fabry Association (CFA) and the Amicus Therapeutics Patient and Professional Advocacy team are conducting a survey to understand the representation of the Fabry community in Canada, to help identify if there are areas where tailored support is needed.
There is limited information on the Canadian Fabry population characteristics including ethnic origin, educational status, income, time to diagnosis and burden of care. This survey may help identify if Fabry diagnosis and care in Canada are accessible and equitable to all.
All responses will be anonymous, and the data gathered from this survey will help CFA and Amicus to identify gaps in services and to advocate for more support for all of the families impacted by Fabry disease in Canada.
Julia Alton