The Canadian Fabry Association (CFA) was incorporated as a non-profit organization to raise awareness and educate the public about Fabry disease, a very rare life threatening genetic, lysosomal storage disorder. Patients are missing a key enzyme, which causes extreme pain, inability to sweat, gastrointestinal problems and eventually kidney failure, heart attacks and strokes. The average life span of a male patient without treatment is 40-50 years of age.

an orphan disease patients and families become a member CFA Spring 2012 Newsletter
genetics of Fabry national and non-profit
organization
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CFA Summer 2011
Newsletter

 

diagnosis, signs
and symptoms
mission statement learn

Canadian Organization
for Rare Disorders

Treatments CFA and the world Help raise awareness for rare disorders  
Living Well with Fabry Disease meet the board    
  message from the
president