The Canadian Government has a website now for working on a national strategy for high cost drugs for rare diseases.
WHO WE ARE
The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.
The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.
We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.