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News & Events

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News

Sangamo gene therapy trial

Latest info!

News

Launch of Sanofi “My Fabry” App!

Sanofi “My Fabry” app has launched!

Event

Webinar with Jerry Walter – A Patient Story Sept 28 2022

This webinar we have the pleasure of having Jerry Walter from the National Fabry Disease Foundation with us to tell his story.

Event

Symposium on Lysosomal Diseases (Halifax, NS, Canada)

This scientific meeting will address both basic science and clinical aspects of these diseases

Event

“Rare Inspiration” by The rare disease network of Alberta

Information and registration for this virtual event

WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

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GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

LEARN MORE

We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.

Julia Alton Executive Director
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1964 Hawkridge Dr.
Thunder Bay ON P7J 1H2
Canada

If have any questions or would like to get involved, please fill in the form below.

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