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Vancouver Patient Empowerment meeting information – Oct 19 2019

Vancouver Patient meeting registration information

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Media

Dr. Aneal Khan: Changing the Outlook for Rare Disease with Precision Medicine

Hello Canadian Fabry Association! Please see this great video featuring Dr. Aneal Khan. It is a great story on Precision Medicine and Gene Sequencing . https://vimeo.com/healthandfamily/review/345778206/93e2d1f34d For any additional information please visit these resources: www.facebook.com/UpHealthandWellness/ www.facebook.com/CanadianHealthFamily/ https://twitter.com/CAHealthFamily

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News

AVROBIO Study information (AVR-RD-01)

Hello CFA Members, please see below this information on AVROBIO’s ongoing study (AVR-RD-01). Thank you! AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing disruptive therapies that have the potential to transform patients’ lives in a single dose. Gene therapy involves the transplantation of normal genes into cells in order to […]

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WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

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GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

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We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.

Julia Alton Executive Director
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748 Kelly St
Thunder Bay ON P7E 2A1
Canada

If have any questions or would like to get involved, please fill in the form below.

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