Be Rare. Be You.
Get your tattoo!

Buy Now
Event

Vancouver Patient Empowerment meeting information – Oct 19 2019

Vancouver Patient meeting registration information

Shares
News

AVRO-RD-01-201, Phase2 Gene Therapy Study

Please see the below release from Avrobio.   Interested in participating? AVRO-RD-01-201 is a Phase2, open-label multinational clinical trial designed to evaluate the safety and efficacy of AVR-RD-01, an ex vivo, lentiviral vector-mediated gene therapy in individuals with Fabry disease. Eligibility criteria: Are between the ages of 16 and 50 Confirmed diagnosis of classic Fabry […]

Shares
News

New study, which is being performed at Emory University by Lacie Mehr

Please see below information on a new study, which is being performed at Emory University by Lacie Mehr, Dawn Laney, MS, CGC, and Morgan Simmons, MS, CGC. Living with FABRY disease? Interested in joining an exciting new study? We are seeking people of ALL AGES with a genetic diagnosis of Fabry disease to join a different […]

Shares

WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

FOLLOW US

GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

LEARN MORE

We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.

Julia Alton Executive Director
Close

Contact Us

748 Kelly St
Thunder Bay ON P7E 2A1
Canada

If have any questions or would like to get involved, please fill in the form below.

Subscribe error, please review your email address.

Close

You're now subscribed, thank you!

Close

There was a problem with your submission. Please check the field(s) with red label below.

Close

Your message has been sent. We'll get back to you soon!

Close