Be Rare. Be You.
Get your tattoo!

Buy Now
Event

Nova Scotia Patient Empowerment Meeting

Hello Nova Scotia CFA members, A Patient Empowerment Meeting is coming your way! Put October 14th in your calendar and fill out the registration form to join us for an empowering day!   Below is the information and also please click here to register!  

Shares
Event

Winnipeg Patient Empowerment Meeting

Please keep reading for details! Registration: Click here

Shares
News

Are You Interested in Sharing Your Experience with Fabry Disease?

Are You Interested in Sharing Your Experience with Fabry Disease? If so, Fulcrum Research Group, an independent, third-party market research firm, is seeking Fabry patients or their caregivers for a market research study. Specifically, the research will aim to gain a better understanding of individual patients’ experiences and opinions about: Their journey from initial symptoms […]

Shares

WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

FOLLOW US

GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

LEARN MORE

We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.

Julia Alton Executive Director
Close

Contact Us

If have any questions or would like to get involved, please fill in the form below.

Subscribe error, please review your email address.

Close

You're now subscribed, thank you!

Close

There was a problem with your submission. Please check the field(s) with red label below.

Close

Your message has been sent. We'll get back to you soon!

Close