Be Rare. Be You.
Get your tattoo!
Buy Now
News
Graham Crouse – Thank you
On behalf of the Canadian Fabry Association we would like to thank Graham Crouse for serving as a board member for over 15 years. Graham was one of the original board members and has helped many patients in Nova Scotia to cope with Fabry disease. He has done an amazing job at facilitating our quarterly […]
News
AVROBIO Announces New Data in Clinical Trials of AVR-RD-01 Investigational Gene Therapy for Fabry Disease
Click here for the full article. Highlights: Relevant Background AVROBIO has two ongoing clinical studies of AVR-RD-01. AVR-RD-01 is an investigational gene therapy for Fabry disease. Eight patients have been dosed across these two studies. There are five patients in the investigator-sponsored Phase 1 trial, which is fully enrolled. There are three patients […]
Event
Vancouver Patient Empowerment meeting information – Oct 19 2019
Vancouver Patient meeting registration information
We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.
Julia Alton
Executive Director