Event
Québec Patient empowerment meeting
Québec patient meeting
Event
Webinar with Dr. Khan – May 9th – Sangamo Gene Therapy clinical trial
Information on the May 9th Webinar with Dr. Khan
Event
Alberta, Saskatchewan, and Manitoba Patient Empowerment Workshop!
Click here to see the information on the meeting coming up in June.
Media
New Venglustat Trials! (Sanofi)
Sanofi has two new trials that were approved!
News
Fabry Disease and Mental Wellness Survey
By answering 15 quick questions, you can help raise funds for Fabry advocacy organizations.
We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.
Julia Alton
Executive Director
