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News

New Gene Therapy Study

The Phase I Gene Therapy Study for Fabry Disease is looking to recruit interested patients. This is a first-in-human study for the treatment of Fabry disease.

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Event

Alberta/Saskatchewan *Agenda* – Patient Empowerment Meeting

Hello Everyone! The Agenda is now available here!! You can still click here to see the information and registration form for the Patient empowerment meeting in Alberta May 5th 2018. DATE: May. 5, 2018 TIME: 9:00am – 3:30pm (Time subject to change) LOCATION: Westin Calgary 320 4 Ave SW, Calgary, AB T2P 2S6 Thank you, Ryan […]

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News

Positive Recommendation for Reimbursement of Galafold

Please see the link to the original article here:   http://ir.amicusrx.com/news-releases/news-release-details/canadian-drug-expert-committee-grants-positive-recommendation

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WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

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GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

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We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.

Julia Alton Executive Director
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If have any questions or would like to get involved, please fill in the form below.

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