Canadian Fabry Association

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News & Events

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Event

Vancouver Patient Empowerment meeting information – Oct 19 2019

Vancouver Patient meeting registration information

News

New study, which is being performed at Emory University by Lacie Mehr

Please see below information on a new study, which is being performed at Emory University by Lacie Mehr, Dawn Laney, MS, CGC, and Morgan Simmons, MS, CGC. Living with FABRY disease? Interested in joining an exciting new study? We are seeking people of ALL AGES with a genetic diagnosis of Fabry disease to join a different […]

Media

Dr. Aneal Khan: Changing the Outlook for Rare Disease with Precision Medicine

Hello Canadian Fabry Association! Please see this great video featuring Dr. Aneal Khan. It is a great story on Precision Medicine and Gene Sequencing . https://vimeo.com/healthandfamily/review/345778206/93e2d1f34d For any additional information please visit these resources: www.facebook.com/UpHealthandWellness/ www.facebook.com/CanadianHealthFamily/ https://twitter.com/CAHealthFamily

WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

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Be Rare. Be You. Get your tattoo!