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News & Events

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Media

Sangamo Update & Press Release

Press Release

Event

Ontario meeting sign up

Sign up for the Ontario Patient empowerment meeting

Event

Youth/Young Adult Empowerment Summit: Sept 22/2024

Information on the Youth/Young Adult Empowerment Summit in Halifax 2024

News

Canadian Fabry Association Community Insights Survey

The Canadian Fabry Association (CFA) and the Amicus Therapeutics Patient and Professional Advocacy team are conducting a survey to understand the representation of the Fabry community in Canada, to help identify if there are areas where tailored support is needed.

Event

Maritime Provinces and Ontario meeting sign up!

Meeting sign up and information

WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

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GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

LEARN MORE

We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.

Julia Alton Executive Director