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Graham Crouse – Thank you

On behalf of the Canadian Fabry Association we would like to thank Graham Crouse for serving as a board member for over 15 years. Graham was one of the original board members and has helped many patients in Nova Scotia to cope with Fabry disease. He has done an amazing job at facilitating our quarterly […]

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News

AVROBIO Announces New Data in Clinical Trials of AVR-RD-01 Investigational Gene Therapy for Fabry Disease

Click here for the full article. Highlights:   Relevant Background   AVROBIO has two ongoing clinical studies of AVR-RD-01. AVR-RD-01 is an investigational gene therapy for Fabry disease. Eight patients have been dosed across these two studies. There are five patients in the investigator-sponsored Phase 1 trial, which is fully enrolled. There are three patients […]

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Event

Vancouver Patient Empowerment meeting information – Oct 19 2019

Vancouver Patient meeting registration information

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WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

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GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

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We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.

Julia Alton Executive Director
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748 Kelly St
Thunder Bay ON P7E 2A1
Canada

If have any questions or would like to get involved, please fill in the form below.

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