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Event

Canadian Fabry Family Camp: May 29-31, 2020

Information on the Canadian Fabry Family Camp: May 29-31, 2020

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Event

CFA Webinar November 18 2019 with Dr. Stacey Fueur – Psychological issues of living with a Rare Disease

Information regarding the upcoming webinar.

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Media

BC/Yukon Patient Empowerment Meeting followup

A note to everyone who joined us!

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News

AVRO-RD-01-201, Phase2 Gene Therapy Study

Information on the Avrobio study: AVRO-RD-01-201, Phase2 Gene Therapy Study

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WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

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GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

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We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.

Julia Alton Executive Director
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Contact Us

748 Kelly St
Thunder Bay ON P7E 2A1
Canada

If have any questions or would like to get involved, please fill in the form below.

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