BE RARE BE YOU
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Event

Symposium on Lysosomal Diseases (Halifax, NS, Canada)

This scientific meeting will address both basic science and clinical aspects of these diseases

Event

“Rare Inspiration” by The rare disease network of Alberta

Information and registration for this virtual event

Media

Fabry “All in the family” video

Link to the “All in the family” video

News

AVROBIO press release – Fabry program discontinued

Information on the resent press release from AVROBIO

Media

Fabry Connection Videos

Links for the Fabry Connection Videos

WHO WE ARE

The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

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GET INVOLVED

The CFA is a small group of patients and their families that have gathered together to support and assist others in the community across Canada. If you have Fabry, or know someone affected by the disease, we hope that you will consider getting involved.

LEARN MORE

We are committed to improving the lives of those who live with and are affected by Fabry disease in Canada.

Julia Alton Executive Director
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Contact Us

1964 Hawkridge Dr.
Thunder Bay ON P7J 1H2
Canada

If have any questions or would like to get involved, please fill in the form below.

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