Media

Fabry “All in the family” video

Link to the “All in the family” video

News

AVROBIO press release – Fabry program discontinued

Information on the resent press release from AVROBIO

Media

Fabry Connection Videos

Links for the Fabry Connection Videos

News

Study opportunity – Fabry Disease

Information on a study to help better understand Fabry Disease.

Event

CFA Community Open Forum Webinar May 26

Information on our Webinar on May 26

Event

Chaperone Therapy with Dr. Khan @ Wed Apr 14, 2021

Information on the webinar April 14th

News

Building a National Strategy for High-Cost Drugs for Rare Disease

The Canadian Government has a website now for working on a national strategy for high cost drugs for rare diseases.

Event

CFA Virtual Family National Conference: March 7th, 2021

**Updated with Agenda!** A one day virtual conference for the Canadian Fabry community. A chance to connect and talk with others.

Event

Rare Disease Day: Be Rare Be You

Rare Disease Day is just around the corner! On February 28th 2021 Rare Disease Day is recognized worldwide to bring awareness to all those living with Rare Diseases. This year the CFA is keeping theme with our “Be Rare Be You” message by bringing you our exciting new  winter toques and mittens. ORDER TODAY at fabrycanada.com Winter […]

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Thunder Bay ON P7J 1H2
Canada

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