Vancouver Patient meeting registration information
Please take the time to read CORD’s message: URGENT! Your Voice is Needed to Keep Rare Disease Drugs Coming to Canada Click here for the article You can also visit the Canadian Organization for Rare Disorders (CORD) at their website https://www.raredisorders.ca/
Hello everyone, thank you so much for a very successful Rare Disease Day. Below is a collage of the photos from the day!
Hello CFA, Below are the details on the upcoming Webinar Wednesday. Join Zoom Meeting https://zoom.us/j/580994594 Meeting ID (if required): 580 994 594
The rare Disease Foundation has posted a great article on this: Click here to view their article
Are You Interested in Sharing Your Experience with Fabry Disease? If so, Fulcrum Research Group, an independent, third-party market research firm, is seeking Fabry patients or their caregivers for a market research study. Specifically, the research will aim to gain a better understanding of individual patients’ experiences and opinions about: Their journey from initial symptoms […]
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