Media

New phase I/II clinical study to explore the potential of ST-920 investigational gene therapy to treat Fabry disease

Please Click Here to see the attached information on the new Gene Therapy study by STARR. Additional information found at: www.staarclinicalstudy.com

Shares
Event

CFA Fabry Family Camp details!

Information and Registration for CFA Fabry Family Camp!

Shares
News

Galafold Oral Chaperone Therapy Reimbursed in Canada

The Canadian Drug Expert Committee (CDEC) and INESSS (Quebec) have recommended in favour of reimbursement of Galafold for….

Shares
Event

Canadian Fabry Family Camp: May 29-31, 2020

Information on the Canadian Fabry Family Camp: May 29-31, 2020

Shares
Media

BC/Yukon Patient Empowerment Meeting followup

A note to everyone who joined us!

Shares
News

AVRO-RD-01-201, Phase2 Gene Therapy Study

Information on the Avrobio study: AVRO-RD-01-201, Phase2 Gene Therapy Study

Shares
News

New study, which is being performed at Emory University by Lacie Mehr

Please see below information on a new study, which is being performed at Emory University by Lacie Mehr, Dawn Laney, MS, CGC, and Morgan Simmons, MS, CGC. Living with FABRY disease? Interested in joining an exciting new study? We are seeking people of ALL AGES with a genetic diagnosis of Fabry disease to join a different […]

Shares
Media

Dr. Aneal Khan: Changing the Outlook for Rare Disease with Precision Medicine

Hello Canadian Fabry Association! Please see this great video featuring Dr. Aneal Khan. It is a great story on Precision Medicine and Gene Sequencing . https://vimeo.com/healthandfamily/review/345778206/93e2d1f34d For any additional information please visit these resources: www.facebook.com/UpHealthandWellness/ www.facebook.com/CanadianHealthFamily/ https://twitter.com/CAHealthFamily

Shares
News

AVROBIO Study information (AVR-RD-01)

Hello CFA Members, please see below this information on AVROBIO’s ongoing study (AVR-RD-01). Thank you! AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing disruptive therapies that have the potential to transform patients’ lives in a single dose. Gene therapy involves the transplantation of normal genes into cells in order to […]

Shares
Close

Contact Us

748 Kelly St
Thunder Bay ON P7E 2A1
Canada

If have any questions or would like to get involved, please fill in the form below.

Subscribe error, please review your email address.

Close

You're now subscribed, thank you!

Close

There was a problem with your submission. Please check the field(s) with red label below.

Close

Your message has been sent. We'll get back to you soon!

Close