The latest news and events relating to Fabry disease

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Fabry Awareness Month – Advocating for Women living with Fabry Disease

Julia and Donna Strauss’ story, and advocacy for women with Fabry.

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Virtual Education Series: COVID-19 – Mindfulness for Uncertain Times

Information on the second in our Virtual Education Series!

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Memo from Innomar regarding COVID-19 in home safety measures

Innomar is implementing additional measures in place to ensure ongoing patient and nurse safety.

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Virtual Education Series

Information for the Fabry community about COVID-19

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Webinar Thursday March 12 2020 with Dawn Laney

Information to join the upcoming webinar.

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New phase I/II clinical study to explore the potential of ST-920 investigational gene therapy to treat Fabry disease

Please Click Here to see the attached information on the new Gene Therapy study by STARR. Additional information found at: www.staarclinicalstudy.com

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CFA Fabry Family Camp details!

Information and Registration for CFA Fabry Family Camp!

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Galafold Oral Chaperone Therapy Reimbursed in Canada

The Canadian Drug Expert Committee (CDEC) and INESSS (Quebec) have recommended in favour of reimbursement of Galafold for….

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Canadian Fabry Family Camp: May 29-31, 2020

Information on the Canadian Fabry Family Camp: May 29-31, 2020

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CFA Webinar November 18 2019 with Dr. Stacey Fueur – Psychological issues of living with a Rare Disease

Information regarding the upcoming webinar.

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