On behalf of the Canadian Fabry Association we want to thank Evelyn Williamson for her years of dedication to our organization. Evelyn was instrumental participating in our push for the government to fund enzyme replacement therapy for patients in the province of Nova Scotia. She was always a ray of sunshine to the patients she […]
Are You Interested in Sharing Your Experience with Fabry Disease? If so, Fulcrum Research Group, an independent, third-party market research firm, is seeking Fabry patients or their caregivers for a market research study. Specifically, the research will aim to gain a better understanding of individual patients’ experiences and opinions about: Their journey from initial symptoms […]
Hello Nova Scotia CFA members, A Patient Empowerment Meeting is coming your way! Put October 14th in your calendar and fill out the registration form to join us for an empowering day! Below is the information and also please click here to register!
Full Press release link Idorsia Pharmaceuticals (www.idorsia.com), a Swiss biotech company, is developing lucerastat, a new oral therapy for patients with Fabry Disease. The Phase 3 clinical study MODIFY has just enrolled its first patients and will investigate the use of lucerastat monotherapy for the treatment of adult patients with Fabry disease, irrespective of their […]
The Canadian Fabry Association (CFA) is conducting a short survey with patients living with Fabry disease and their caregivers. If you qualify and successfully complete the survey, you will have the option to enter in a draw to win a CAN $150 gift certificate to Keg Steakhouse. You may complete the survey only once. Your […]
Hello Everyone! The Agenda is now available here!! You can still click here to see the information and registration form for the Patient empowerment meeting in Alberta May 5th 2018. DATE: May. 5, 2018 TIME: 9:00am – 3:30pm (Time subject to change) LOCATION: Westin Calgary 320 4 Ave SW, Calgary, AB T2P 2S6 Thank you, Ryan […]
Please see the link to the original article here: http://ir.amicusrx.com/news-releases/news-release-details/canadian-drug-expert-committee-grants-positive-recommendation
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