Event

Webinar with Jerry Walter – A Patient Story Sept 28 2022

This webinar we have the pleasure of having Jerry Walter from the National Fabry Disease Foundation with us to tell his story.

Event

Symposium on Lysosomal Diseases (Halifax, NS, Canada)

This scientific meeting will address both basic science and clinical aspects of these diseases

Event

“Rare Inspiration” by The rare disease network of Alberta

Information and registration for this virtual event

Media

Fabry “All in the family” video

Link to the “All in the family” video

News

AVROBIO press release – Fabry program discontinued

Information on the resent press release from AVROBIO

Media

Fabry Connection Videos

Links for the Fabry Connection Videos

News

Study opportunity – Fabry Disease

Information on a study to help better understand Fabry Disease.

Event

CFA Community Open Forum Webinar May 26

Information on our Webinar on May 26