News

Positive Recommendation for Reimbursement of Galafold

Please see the link to the original article here:   http://ir.amicusrx.com/news-releases/news-release-details/canadian-drug-expert-committee-grants-positive-recommendation

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*Updated* Ontario Patients “Gene Therapy for Fabry Disease” Agenda

Hello CFA Members, Please see the below agenda for the Ontario Patients “Gene Therapy for Fabry Disease” Information Meeting. FACT Information Session Toronto Airport Marriot April 7th, 2018  AGENDA 10:00               Arrival (beverages and snacks available) 10:30               Introduction 10:35               Dr. Michael West “Fabry Disease-Etiology and Conventional Treatment” 10:50               Dr. Aneal Khan “Fabry Disease Gene Therapy Trial” 11:05               […]

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Alberta/Saskatchewan – Patient Empowerment Meeting

Hello Everyone! Please click here to see the information and registration form for the Patient empowerment meeting in Alberta May 5th 2018. DATE: May. 5, 2018 TIME: 9:00am – 3:30pm (Time subject to change) LOCATION: Westin Calgary 320 4 Ave SW, Calgary, AB T2P 2S6   Thank you, Ryan secretary@fabrycanada.com

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Be Rare Be You 2018 a great success!

The CFA set out to share the message of empowerment, to embrace what makes you rare, and own it.

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CFA – Webinar Wednesday Feb 21 2018

Information on the Webinar hosted by Julia Alton

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From pain to empowerment with Fabry disease

Approximately 1/12 Canadians are affected by a rare disease and prompt diagnosis is imperative as symptom management, and treatment options can drastically improve quality of life. Share the message of awareness and find what makes you rare. Maclean’s Photo Credit: Patrick Chondon http://www.macleans.ca/sponsored/from-pain-to-empowerment-with-fabry-disease/

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Webinar Wednesday (February 21st 2018)

Information on the Webinar hosted by Julia Alton

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Happy Holidays!

Happy Holidays from the Canadian Fabry Association!

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Webinar Wednesday (January 3rd 2018)

Information on the Webinar hosted by Julia Alton

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Replagal Approved by Health Canada

Exciting news for the CFA Community – Replagal has been approved by Health Canada as of February 2017 and all patients have been transitioned from the REP-081 study at this point. Replagal is a long-term Enzyme Replacement Therapy (ERT), the infusion will be given every 2 weeks, treatment time being approximately 4o minutes. It is […]

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