Vancouver Patient meeting registration information
Moncton Patient meeting registration information
Hello Canadian Fabry Association, Below is some information on a 3rd party research project if anyone is interested. This is not being conducted by the CFA, we are passing along this information. A french translation will follow / Traduction française à suivre ICARE, an international market agency specializing in medical and pharmaceutical research, […]
Hello everyone, We will be taking a break from the normal webinar schedule for the summer. We will return Oct 2nd with our next webinar. Thank you everyone for making our webinar’s a success! Ryan Deveau Secretary | Canadian Fabry Association
On behalf of the Canadian Fabry Association we want to thank Evelyn Williamson for her years of dedication to our organization. Evelyn was instrumental participating in our push for the government to fund enzyme replacement therapy for patients in the province of Nova Scotia. She was always a ray of sunshine to the patients she […]
Please take the time to read CORD’s message: URGENT! Your Voice is Needed to Keep Rare Disease Drugs Coming to Canada Click here for the article You can also visit the Canadian Organization for Rare Disorders (CORD) at their website https://www.raredisorders.ca/
Hello everyone, thank you so much for a very successful Rare Disease Day. Below is a collage of the photos from the day!
Hello CFA, Below are the details on the upcoming Webinar Wednesday. Join Zoom Meeting https://zoom.us/j/580994594 Meeting ID (if required): 580 994 594
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