Please see below information on a new study, which is being performed at Emory University by Lacie Mehr, Dawn Laney, MS, CGC, and Morgan Simmons, MS, CGC. Living with FABRY disease? Interested in joining an exciting new study? We are seeking people of ALL AGES with a genetic diagnosis of Fabry disease to join a different […]
Hello Canadian Fabry Association! Please see this great video featuring Dr. Aneal Khan. It is a great story on Precision Medicine and Gene Sequencing . https://vimeo.com/healthandfamily/review/345778206/93e2d1f34d For any additional information please visit these resources: www.facebook.com/UpHealthandWellness/ www.facebook.com/CanadianHealthFamily/ https://twitter.com/CAHealthFamily
Hello CFA Members, please see below this information on AVROBIO’s ongoing study (AVR-RD-01). Thank you! AVROBIO, a leader in lentiviral-based gene therapies, is a clinical stage company developing disruptive therapies that have the potential to transform patients’ lives in a single dose. Gene therapy involves the transplantation of normal genes into cells in order to […]
On behalf of the Canadian Fabry Association we would like to thank Graham Crouse for serving as a board member for over 15 years. Graham was one of the original board members and has helped many patients in Nova Scotia to cope with Fabry disease. He has done an amazing job at facilitating our quarterly […]
Click here for the full article. Highlights: Relevant Background AVROBIO has two ongoing clinical studies of AVR-RD-01. AVR-RD-01 is an investigational gene therapy for Fabry disease. Eight patients have been dosed across these two studies. There are five patients in the investigator-sponsored Phase 1 trial, which is fully enrolled. There are three patients […]
Vancouver Patient meeting registration information
Moncton Patient meeting registration information
Hello Canadian Fabry Association, Below is some information on a 3rd party research project if anyone is interested. This is not being conducted by the CFA, we are passing along this information. A french translation will follow / Traduction française à suivre ICARE, an international market agency specializing in medical and pharmaceutical research, […]
Hello everyone, We will be taking a break from the normal webinar schedule for the summer. We will return Oct 2nd with our next webinar. Thank you everyone for making our webinar’s a success! Ryan Deveau Secretary | Canadian Fabry Association
On behalf of the Canadian Fabry Association we want to thank Evelyn Williamson for her years of dedication to our organization. Evelyn was instrumental participating in our push for the government to fund enzyme replacement therapy for patients in the province of Nova Scotia. She was always a ray of sunshine to the patients she […]
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