*Updated* Ontario Patients "Gene Therapy for Fabry Disease" Agenda

Hello CFA Members,

Please see the below agenda for the Ontario Patients “Gene Therapy for Fabry Disease” Information Meeting.

FACT Information Session

Toronto Airport Marriot

April 7^th, 2018

 AGENDA

10:00               Arrival (beverages and snacks available)

10:30               Introduction

10:35               Dr. Michael West

“Fabry Disease-Etiology and Conventional Treatment”

10:50               Dr. Aneal Khan

“Fabry Disease Gene Therapy Trial”

11:05               Mr. Darren Bidulka

“The Patient Experience”

11:25               Introduction of the FACTs Team

11:30               Question Period

12:00               Luncheon