We thank you in advance for your time and thoughtful input – if you would like to enter your name in for a draw to win a $50 Amazon GC please e-mail julia.alton@
Your Experience Matters
Your lived experience with Fabry disease is essential to improving care. This survey is designed to help the Canadian Fabry Association better understand what patients experience day to day, what is and isn’t discussed in clinic, and what healthcare teams are doing well.
Your responses will guide advocacy efforts, education for clinicians, and future patient programs. Participation is voluntary and confidential, and you may skip any questions you prefer not to answer.
Thank you for taking the time to share your perspective – your voice matters.
Click here to fill out the survey
If you have trouble you can copy / paste the link from here:
https://www.surveymonkey.com/