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What is Fabry Disease?
orphan disease
genetics
diagnosis, signs and symptoms
Treatments
Who is the Canadian Fabry Association?
patients and families
national non-profit organization
mission statement
CFA and the world
meet the board
message from the president
How Can I Help?
become a member
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News
Fabry Surveys and Questionnaires
Two Fabry Surveys and Questionnaires
2006 National Pharmaceutical Strategy
ERT for Fabry Disease
Phase II Study
national events
Fabrazyme Replagal Update
Fabrazyme Shortage Information
Fabrazyme Shortage Letter
Radio Scripts
Rare Disease Day - National Post, Feb 2008
Delphi Survey on Neglected and Orphan Diseases
2009 National Convention
First meeting highlights
CORD Chance for Life Fund
provincial events
Nova Scotians urged to participate in study of Fabry Disease
All Provinces
Canadian Fabry Disease Initiative Study
Temporary Shortage of Fabrazyme
Public Drug Programs letter to CORD
Fabrazyme shortage update - Nov 10th 2009
ERT with agalsidase alfa - Jan 27th 2010
Quick Links
Radio Scripts
Fabry Radio Script 1 (doc)
Radio Spot 1 (audio file)
Fabry Radio Script 2 (doc)
Radio Spot 2 (audio file)
Fabry Disease Video News Release (doc)
Radio Scripts