News

New Gene Therapy Study

The Phase I Gene Therapy Study for Fabry Disease is looking to recruit interested patients. This is a first-in-human study for the treatment of Fabry disease.

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Happy Holidays!

Happy Holidays from the Canadian Fabry Association!

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Event

Webinar Wednesday (January 3rd 2018)

Information on the Webinar hosted by Julia Alton

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Replagal Approved by Health Canada

Exciting news for the CFA Community – Replagal has been approved by Health Canada as of February 2017 and all patients have been transitioned from the REP-081 study at this point. Replagal is a long-term Enzyme Replacement Therapy (ERT), the infusion will be given every 2 weeks, treatment time being approximately 4o minutes. It is […]

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Galafold Approval

Excited to share Health Canada’s approval of the oral- precision medicine Galafold! We look forward to this differentiated treatment option for Canadian patients with amenable mutations. Please see the press release for further information.

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Patient Empowerment Pilot Project

Ontario Patients – Please join us for our very first Patient Empowerment Pilot Project Workshop.

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Rare Disease Heroes – Kaye LeMoine

The CFA is honoured and proud to share this Rare Disease Hero Video featuring Kaye LeMoine….

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Dr. West / Resverlogix and Apabetalone

In the 16-week clinical trials expected to start later this year — if the research method is given the nod by the QE II’s ethics committee — the researchers led by West and Khan will measure the effects of the drug apabetalone on 44 patients suffering with Fabry disease.

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Join the Board

The Board is responsible for the highest level of decision-making and communicates the organization’s vision to all members and the community.

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Event

WORLDSymposium Annual Scientific Meeting

The Annual WORLDSymposium is often cited as the most important scientific meeting on lysosomal molecular biology, disorders and treatment.

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CORD’s Annual Rare Disease Day Conference

The Canadian Organization for Rare Disorders (CORD) is hosting a Rare Disease Day 2017 conference taking place on March 30-31, 2017.

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