Médias

Fabry « All in the family » video

Link to the « All in the family » video

Nouv

AVROBIO press release – Fabry program discontinued

Information on the resent press release from AVROBIO

Médias

Fabry Connection Videos

Links for the Fabry Connection Videos

Nouv

Study opportunity – Fabry Disease

Information on a study to help better understand Fabry Disease.

Évén

CFA Community Open Forum Webinar May 26

Information on our Webinar on May 26

Évén

Chaperone Therapy with Dr. Khan @ Wed Apr 14, 2021

Information on the webinar April 14th

Nouv

Building a National Strategy for High-Cost Drugs for Rare Disease

The Canadian Government has a website now for working on a national strategy for high cost drugs for rare diseases.

Évén

CFA Virtual Family National Conference: March 7th, 2021

**Updated with Agenda!** A one day virtual conference for the Canadian Fabry community. A chance to connect and talk with others.