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Patient Empowerment Pilot Project

Ontario Patients – Please join us for our very first Patient Empowerment Pilot Project Workshop.

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New Gene Therapy Study

Arrive bientôt…

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Replagal Approved by Health Canada

Désolé, cet article est seulement disponible en Anglais Américain.

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Galafold Approval

Désolé, cet article est seulement disponible en Anglais Américain.

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Rare Disease Heroes – Kaye LeMoine

The CFA is honoured and proud to share this Rare Disease Hero Video featuring Kaye LeMoine….

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Dr. West / Resverlogix and Apabetalone

In the 16-week clinical trials expected to start later this year — if the research method is given the nod by the QE II’s ethics committee — the researchers led by West and Khan will measure the effects of the drug apabetalone on 44 patients suffering with Fabry disease.

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Join the Board

Arrive bientôt…

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Rare Disease Day 2017

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