Event

Alberta, Saskatchewan, and Manitoba Patient Empowerment Workshop!

Click here to see the information on the meeting coming up in June.

Media

New Fabry clinical trials!

Sanofi has two new trials that were approved!

News

Fabry Disease and Mental Wellness Survey

By answering 15 quick questions, you can help raise funds for Fabry advocacy organizations.

News

Launch of Sanofi “My Fabry” App!

Sanofi “My Fabry” app has launched!

Event

Webinar with Jerry Walter – A Patient Story Sept 28 2022

This webinar we have the pleasure of having Jerry Walter from the National Fabry Disease Foundation with us to tell his story.

Event

Symposium on Lysosomal Diseases (Halifax, NS, Canada)

This scientific meeting will address both basic science and clinical aspects of these diseases

Event

“Rare Inspiration” by The rare disease network of Alberta

Information and registration for this virtual event