Annual Canadian Fabry Association and National Patient Conference
September 19, 2009 in Halifax, Nova Scotia
The Canadian Fabry Association held its Annual Canadian Fabry Association and National Patient Conference on September 19, 2009 in Halifax, Nova Scotia at The Lord Nelson Inn & Suites. A large number of Fabry patients, their families, friends and supporters from all over Canada attended this meeting.
The presentations given during Canadian Fabry Association General Convention in Halifax September 19, 2009 are available to be viewed on youtube. Several speakers had PowerPoint presentation that are referred to during the talks but unfortunately they didn’t come out on video.
Presentations and youtube locations:
Evidence and Practice in the Netherlands-Dr.Aerts - http://www.youtube.com/watch?v=i9PkCGx08c8
Evidence and Practice in Canada-Dr West Part1 - http://www.youtube.com/watch?v=xJObmZ0NpE0
Evidence and Practice in Canada-Dr West Part 2 - http://www.youtube.com/watch?v=ZYl4Mm3Akpc
Evidence and Practice in Canada-Dr West Part 3 = http://www.youtube.com/watch?v=VR2jVK9SM4c
Presentation of CFDI Masters Thesis - Mark Embrett Part1 - http://www.youtube.com/watch?v=2XwNy9oyk-0
Presentation of CFDI Masters Thesis - Mark Embrett Part2 - http://www.youtube.com/watch?v=SFJ0E-87bYg
Ed Canada Updates - Ed Koning - http://www.youtube.com/watch?v=P4Fqj7_xAf4
Comprehensive Care in the UK-Dr Mehta Part1 - http://www.youtube.com/watch?v=gWAGUvqcmlk
Comprehensive Care in the UK-Dr Mehta Part 2 - http://www.youtube.com/watch?v=mwWWhdcLXwQ
Comprehensive Care in the UK-Dr Mehta Part 3 = http://www.youtube.com/watch?v=UdXx8P55fRI
Comprehensive Care in the UK-Dr Mehta Part 4 = http://www.youtube.com/watch?v=ZSs0Q1nq8uM
Patient Registries-Durhane Part1 - http://www.youtube.com/watch?v=ithF1fZMttE
Patient Registries-Durhane Part 2 - http://www.youtube.com/watch?v=PzEey-thQJg
Fabry Lipid Discovery - Dr Aerts Part1 - http://www.youtube.com/watch?v=qT b6mcjKcQ
Fabry Lipid Discovery - Dr Aerts Part 2 - http://www.youtube.com/watch?v=u_cYjch3AbU
Fabry Lipid Discovery - Dr Aerts Part 3 = http://www.youtube.com/watch?v=7iC9bcZt8aM
ERT Access Norway -Rune Sedal Part1 - http://www.youtube.com/watch?v=CIDKGVK65I4
ERT Access Norway -Rune Sedal Part 2 - http://www.youtube.com/watch?v=Z9BY3GwhnQA
ERT Access Norway -Rune Sedal Part 3 = http://www.youtube.com/watch?v=dax6dVg9Op8
ERT Access Norway -Rune Sedal Part 4 = http://www.youtube.com/watch?v=hLZMaUrq9do
Chaperone Therapy - Dr Clarke Part1 - http://www.youtube.com/watch?v=yVzYd1yNRHA
Chaperone Therapy - Dr Clarke Part 2 - http://www.youtube.com/watch?v=vY2KNUrrLBQ
Chaperone Therapy - Dr Clarke Part 3 = http://www.youtube.com/watch?v=h0REb-Z64Hk
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