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What is Fabry Disease?
orphan disease
genetics
disgnosis, signs and symptoms
Treatments
Who is the Canadian Fabry Association?
patients and families
national non-profit organization
mission statement
CFA and the world
meet the board
message from the president
How Can I Help?
become a member
donate
learn
News
Fabry Surveys and Questionnaires
Two Fabry Surveys and Questionnaires
2006 National Pharmaceutical Strategy
ERT for Fabry Disease
Phase II Study
national events
Radio Scripts
Rare Disease Day - National Post, Feb 2008
Delphi Survey on Neglected and Orphan Diseases
2006 National Convention
First meeting highlights
CORD Chance for Life Fund
provincial events
Nova Scotians urged to participate in study of Fabry Disease
All Provinces
Canadian Fabry Disease Initiative Study
Quick Links
Quick Links
Pharmaceutical Companies
Amicus Theraputics, Inc.
http://www.amicustherapeutics.com
Genzyme
http://www.genzyme.com
Shire Pharmaceuticals Group
http://www.shire.com/shire/Pipeline/fabry.jsp
Fabry Medical Information Sites
BioMed Central - Publisher of more than 160 peer-reviewed open access journals
http://www.biomedcentral.com/1471-2350/3/10
Mount Sinai School of Medicine
http://www.mssm.edu/genetics/fabry/
National Center for Biotechnology Information
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=301500
Fabry Disease
http://www
.fabrydisease.com
Fabry Registry
https://www.lsdregistry.net/fabryregistry/
GARROD
http://www.garrod.ca/
FDA - U.S. Food and Drug Administration
http://www.fda.gov/bbs/topics/NEWS/2003/NEW00897.html
Genetic Alliance
http://www.geneticalliance.org/
U of T - Medical Biophysics
http://medbio.utoronto.ca/faculty/medin.html
U of T - Medical Biophysics
http://www.news.utoronto.ca/bin6/041115-683.asp
Health Canada – Blueprint for Renewal
http://www.hc-sc.gc.ca/ahc-asc/branch-dirgen/hpfb-dgpsa/blueprint-plan/index_e.html
Large Scale Biology Corporation's (LSBC)
http://www.lsbc.com/
The National Institute of Neurological Disorders and Stroke (NINDS)
http://www.ninds.nih.gov/disorders/fabrys/fabrys.htm
National Institutes of Health (NIH)
http://www.nih.gov/
National Organization for Rare Disorders
http://www.rarediseases.org/
Veritas Medicine
http://www.veritasmedicine.com/
Fabry Patient Sites
Fabry Quebec
http://membres.lycos.fr/fabryquebec/
CORD. Canadian Organization for Rare Disorders
http://www.raredisorders.ca/index.php/site
The Consumer Advocare Network
http://www.consumeradvocare.org/
Canadian Anemia Institute
http://www.anemiainstitute.org/
Fabry International Network
http://www.fabryintnetwork.com/
Fabrazyme.com
http://www.fabrazyme.com
Fabry Community
http://www.fabrycommunity.com/global/fc_p_hp_homepage.asp
Fabry - USA
http://www.fabry.org/
LDA - Lysosomal Diseases Australia
http://www.lda.org.au/
Fabry - England (MPS Society)
http://www.mpssociety.co.uk/
Global Organization for Lysosomal Diseases (GOLD)
http://www.goldinfo.org/
ADAC - Spanish Association for Growth and Lysosomal Diseases
http://www.adac-es.net/
APMF - Fabry Disease Patient Association - France
http://www.apmf-fabry.org/
Fabry Support Group - China
http://www.fabry.org.cn/
Fabry - Norway
http://www.fabry.no/
Fabry Spain
http://www.fedef.org/index1.html
Fabry Support & Informatie Groep Nederland
http://www.fabry.nl/
Fabry - Swiss
http://www.fabrysuisse.ch/
Morbus Fabry - Germany
http://www.fabry-selbsthilfegruppe.de/
Lysosomal Storage Disorders - France
http://www.vml-asso.org/
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