Pharmaceutical Companies
Amicus Theraputics, Inc. http://www.amicustherapeutics.com Genzyme http://www.genzyme.com Shire Pharmaceuticals Group http://www.shire.com/shire/Pipeline/fabry.jsp
Fabry Medical Information Sites
BioMed Central - Publisher of more than 160 peer-reviewed open access journals http://www.biomedcentral.com/1471-2350/3/10 Mount Sinai School of Medicine http://www.mssm.edu/genetics/fabry/ National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=301500 Fabry Disease http://www.fabrydisease.com Fabry Registry https://www.lsdregistry.net/fabryregistry/ GARROD http://www.garrod.ca/ FDA - U.S. Food and Drug Administration http://www.fda.gov/bbs/topics/NEWS/2003/NEW00897.html Genetic Alliance http://www.geneticalliance.org/ U of T - Medical Biophysics http://medbio.utoronto.ca/faculty/medin.html U of T - Medical Biophysics http://www.news.utoronto.ca/bin6/041115-683.asp Health Canada – Blueprint for Renewal http://www.hc-sc.gc.ca/ahc-asc/branch-dirgen/hpfb-dgpsa/blueprint-plan/index_e.html Large Scale Biology Corporation's (LSBC) http://www.lsbc.com/ The National Institute of Neurological Disorders and Stroke (NINDS) http://www.ninds.nih.gov/disorders/fabrys/fabrys.htm National Institutes of Health (NIH) http://www.nih.gov/ National Organization for Rare Disorders http://www.rarediseases.org/ Veritas Medicine http://www.veritasmedicine.com/
Fabry Patient Sites Fabry Quebec http://membres.lycos.fr/fabryquebec/
CORD. Canadian Organization for Rare Disorders http://www.raredisorders.ca/index.php/site
The Consumer Advocare Network http://www.consumeradvocare.org/ Canadian Anemia Institute http://www.anemiainstitute.org/
Fabry International Network http://www.fabryintnetwork.com/ Fabrazyme.com http://www.fabrazyme.com Fabry Community http://www.fabrycommunity.com/global/fc_p_hp_homepage.asp
Fabry - USA http://www.fabry.org/
Fabrys Support Group Inc of Australia http://www.fabry.net.au President - Megan Fookes
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LDA - Lysosomal Diseases Australia http://www.lda.org.au/ Fabry - England (MPS Society) http://www.mpssociety.co.uk/ Global Organization for Lysosomal Diseases (GOLD) http://www.goldinfo.org/ ADAC - Spanish Association for Growth and Lysosomal Diseases http://www.adac-es.net/ APMF - Fabry Disease Patient Association - France http://www.apmf-fabry.org/ Fabry Support Group - China http://www.fabry.org.cn/ Fabry - Norway http://www.fabry.no/ Fabry Spain http://www.fedef.org/index1.html Fabry Support & Informatie Groep Nederland http://www.fabry.nl/ Fabry - Swiss http://www.fabrysuisse.ch/ Morbus Fabry - Germany http://www.fabry-selbsthilfegruppe.de/ Lysosomal Storage Disorders - France http://www.vml-asso.org/
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