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Who is the Canadian Fabry Association? |
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The Canadian Fabry Association (CFA) was incorporated as a non-profit
organization to raise awareness and educate the public about Fabry
disease, a very rare life threatening genetic, lysosomal storage
disorder. Patients are missing a key enzyme, which causes extreme pain,
inability to sweat, gastrointestinal problems and eventually kidney
failure, heart attacks and strokes. The average life span of a male
patient without treatment is 40-50 years of age.
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